Tuesday, July 15, 2014

Happy

What is the happiest you've ever been? What's your definition of happy? Are you happy at least once every day?

If we're lucky, we get 90 plus years to be happy or make our happiness but unfortunately, 90 years isn't always given to everyone. My brother left this world for another one when he was 29 and I often wonder who much happiness he experienced in his 29 years. It doesn't take long for me to remember all the practical jokes he played, especially on Emily and Ryan, and the laughs we always shared when we were together. The Christmas after he passed away, Trouper, Ryan, Kyna and Shannon decided to carry on Bumper's practical joke legacy and rearrange Christmas decorations in my Mom's neighborhood, most in "naughty" poses. It was quite comical, although Mom was afraid she'd be fired from the neighborhood board association if her fellow neighbors knew her family were Christmas decoration hoodlums.

Recently, Emily said something to me that made me think about my own life. She said she wants to experience one moment of happiness a day. She didn't say she wants to live a happy life just that she wants one moment, one pure moment of happiness daily. At first, it made me a little sad to think she didn't want her days to be filled with happy but then I realized my daughter is a realist and even at 18 (she will be 19 next week) she understands that life isn't a bowl of cherries. Bad things happen to good people, sad times occur, and being happy 24/7 isn't realistic. In the end, that's what I want for all my friends and family; one genuinely happy moment everyday.

That doesn't mean we can't have exuberant moments of happiness. The ones that are so sweet they cause cavities. You might be wondering what this has to do with Trouper, since my blog is supposed to be about Super Trouper. One of my happiest, most delicious memories just happens to be one he experienced "when he was sleeping". I have asked him numerous times to write a blog entry about his experiences but he keeps resisting. I will let you know that his 9 days post heart attack "sleeping", he experienced or re-experienced different memories, ones throughout his life. Yes, he was fortunate enough to visit with loved ones who've left this earth, and I sometimes envy the time he got to spend with my jokester brother. I digress. He got to relive our visit to the Happiest Place on Earth, Disney World. When Emily was 6 and Ryan was 10, we took a summer vacation to Orlando. Ryan, being a boy and a little older, wasn't that excited to visit Mickey and Company. He was over the moon happy we were going to visit GatorLand. Trust me, that was an adventure and I pray I never have to witness hundreds of Gator's fighting over some food again. My best memory, however, was when we entered the Magic Kingdom. We were already exhausted from fighting the crowds of people on the trains, hauling around backpacks in the sweltering Florida morning. When we entered the gates, we were in awe of the castle that stands in the background. Emily saw her first real life Princess and was in pure heaven. Ryan, however, was ready to leave and head back to the magical land of fighting gators. However, the carriage that had just dropped off the princess caught his attention. More over, the horse pulling the carriage caught his eye. He mentioned to us how pretty the horse was, and how big. Just then, as we all gazed at the horse, the massive animal relived himself. No, he didn't urinate, he pooped all over the ground. It was massive, and it smelled horribly. We laughed. All four of us until we cried. We had spent months anxiously anticipating our grand adventure and the moment we were about to experience what we thought was going to be pure joy, a horse took a crap. Almost like saying "welcome, this place isn't all it's cracked up to be". To this day, that memory, the moment all four of us laughed until we cried, stands out to me and makes me smile. I think of it often, and I guess Trouper does too. He dreamed of that moment, or he relived it, I'm not sure which but it's one that obviously brings him happiness.

So my friends, we don't all get 90 years of joy and happy but we do get happiness in this life. Sometimes it just takes some horse crap to make you happy.

Thursday, July 3, 2014

Just like the Jeffersons, we are movin' on up!

Happy 3rd of July! I hope the day before the kaboom holiday finds you happy, healthy and excited for a 3-day weekend!

Last 4th of July, it rained all day. Trouper's Mom Teresa and her friend Cynthia were in town and, since all the firework displays were cancelled, Emily and her crew decided to light up our cul-de-sac during a lull in the rainfall. I expected the neighbors to get upset but they just came out and watched, probably tired of being cooped up in their houses. Anywho, this 4th is different. We really don't have plans, other than trying to get some housework and yard work completed. It's also different because, as of Tuesday, Trouper is listed the highest possible listing for a home bound person on the heart transplant list. His status is officially 1B, and we are elated! This means he is high on the list, there are 9 other 1B's at Piedmont (his transplant center) and he gets to wait out his time at home, where he belongs! The summer holidays are called the trinity for organ donation. It starts with Labor Day, includes 4th of July and concludes with Memorial Day. Unfortunately, this is when many people lose their lives, but fortunately, if their loved ones see fit, their organs go to save the lives of people like our Super Trouper.

We've had a rough few months but this certainly lifted our spirits. I am back to making my lists; who to call, who to text, what to bring, where to go, and how to get there. Thank goodness our Gina will be right behind us as we head to the hospital and I will probably give her the task of contacting and coordinating all our out of towners. I'm sad my sister won't get to be with us, she's pregnant and traveling isn't in her future anytime soon but I know she will be there in spirit and we will eat a grilled cheese sandwich from Doris in the cafeteria and visit Au Bon Pain for brownies and cookies in her honor. I know my Dad and family and Kim and Jay and family will be there, pacing and waiting with us. Are we apprehensive about the surgery, yes. Last weekend we talked about the complexity and the actual drawbacks of the transplant versus the LVAD but we are firm in our decision that a transplant is best for Trouper. Last week, we watched a documentary about the black market for kidneys. When people said they had been listed for eight to ten years, I cried. I can't imagine the agony of waiting that long. We are nearing a year (with Trouper inactive because of the LVAD for 9 months) but each day is so stressful, I can't imagine ten years!

So, as you celebrate the day of independence, celebrate a little for Super Trouper. Hopefully his independence from wires, batteries, tubes and bandages is right around the corner. Also, when you say your prayers, I'm certain we are already included but please include our donor as well. Their family is about to go through the most difficult thing they will ever go through, losing a loved one way too soon. I understand their pain. However, without organ donation there is no story, no hope, no transplant. But when there is an organ donor, life springs from death, sorrow turns to hope and a terrible loss becomes a gift. Happy 4th friends and family!